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This Is Not What I Ordered: conversations on chronic illness, loss + change


Nov 22, 2023

 

In today’s special bonus episode, I delve into the topic of navigating the holidays with loved ones while dealing with chronic illness. The holiday season can be both joyous and challenging, especially when we want to connect with family and friends who may not fully understand our health challenges. In today’s episode, I discuss the importance of communication and setting clear expectations with loved ones, the power of sharing our health challenges openly, and the value of staying connected with others who understand what we're going through. 

I also share my own personal experience of living with multiple sclerosis for a decade, and offer valuable insights to help you create a meaningful and fulfilling holiday season, even in the midst of health challenges. Finally, you’ll hear about my upcoming holiday workbook, A Gentle Guide to Creating Joy and Connection for the Holidays While Living with Chronic Illness and Health Challenges,  which is designed to help you navigate the holiday season more effectively. So, let's dive into this episode and explore practical ways to make your holidays more enjoyable and inclusive.

For more valuable insights and guidance on navigating the holiday season with chronic illness, be sure to listen to the full episode. And if you're interested in exploring the holiday workbook mentioned in the episode, visit www.thisisnotwhatiordered.com 

Episode Highlights

  • The importance of asking loved ones for what you need during the holiday season

  • The value of sharing your health challenges openly and authentically with family and friends

  • Tips on managing expectations and helping your loved ones understand your unique situation

  • Strategies for staying connected with friends and loved ones who also have health challenges

  • The significance of simply being present and not feeling pressured to be at your best during the holidays

  • A gentle holiday preparation workbook designed to help you navigate the season with ease

 

Quotes

"I think if I had really been told that I could share and actually have that be a positive thing, it really would have changed my experience of showing up with a body that has its own plans and feel less alone."

"When we can share more openly about what's going on for us, I think it invites people into our world and it invites them to be in the messiness with us and helps us feel like we've got companions."

"The people who love you just want to be around you. So keep that in mind, even if you've got people who care about you and maybe they don't quite understand how to show up for you, or maybe they're feeling their own emotions."

"Just being in the room with you is significant. You may have a ton of symptoms. You may have a bad mood sometimes. You might not feel like your full self. You might just be dealing with not feeling up for quite the social interaction that you used to or that you wish you could be up for. Just know that that's okay."

Links:

This Is Not What I Ordered

Lauren Selfridge